It’s very hard for me to forget that somber year in 1963—the year when my lights went out. If you turned on a light, I would scream in agony. My parents had no idea what was happening. To put it simply, the lights drove me crazy. I would itch, itch, and itch like mad. This […]
It’s Lights Out for You Read More »
When we look at the word caregiver, the best definition is someone who helps when you can no longer care for yourself. It’s during these times that you may need the assistance of a caregiver. For me, I’m still able to bathe myself, fix my hair, prepare meals, and clean my house. But there was
Is My Husband Really My Caregiver? Read More »
I grew up in the days when there were no cell phones, iPads, tablets, or electronic devices to keep you entertained. For me, a young girl living with psoriasis in the worst way—covered from head to toe—my source of joy was something simple: Charlie Brown. For more than 40 years, Charlie Brown and Snoopy became
My Memories of Charlie Brown – Psoriasis on the Brain Read More »
Life has thrown me into more battles than I ever imagined, but none tougher than psoriasis and psoriatic arthritis. Every day feels like stepping into the ring with a relentless opponent. But let me say this upfront – I fight not just for myself, but for everyone walking this road. If you believe in this
Golden Glove Fighter: Living Strong With Psoriasis Read More »
When you’re dealing with psoriatic arthritis pain, the last thing you probably want to do is put on a bra. I have had psoriasis for 55 years and psoriatic arthritis for 25 years. I never thought, in my 60 years on this earth, that I would be writing about my undergarments. When I told my
How Clothing Empowers People With Disabilities Read More »
As I was growing up, I always wondered whether my siblings would get psoriasis. None of them ever developed this disease. Since we were sisters, I thought maybe they might get it too. Many times, I found myself looking at their faces, arms, and legs—but to no avail: no psoriasis, no symptoms. How could this
It’s All in the Blood (Sisters Share) Read More »
Living with psoriasis and psoriatic arthritis (PsA) is no easy journey. These chronic conditions can cause physical discomfort and emotional strain, often leading to feelings of isolation if there’s no strong support system. However, with determination and the right people by your side, it’s possible to overcome the challenges and live a fulfilling life. This
Psoriasis and Psoriatic Arthritis – A Patient Perspective Read More »
Explaining psoriatic arthritis to someone who has never experienced it is like trying to describe a color they’ve never seen. For over 35 years, I’ve tried to make people understand this autoimmune disease, but it often feels like an uphill battle. Psoriatic arthritis occurs when the immune system mistakenly attacks healthy joints and skin, causing
Step Into My World – I Dare You Read More »
I barely think about my feet—most of the time, they’re hidden. It wasn’t until I noticed someone else’s smooth, flawless feet that I became self-conscious about mine. What often feels like the most insignificant part of our body, constantly pressed to the ground as we go about our day, has recently become the center of
My Dry, Cracked Feet Read More »
Living with psoriasis often feels isolating. People like us, who battle this condition daily, may feel different, unattractive, and even misunderstood. Social media doesn’t always help—endless posts of people flaunting their flawless skin can deepen those feelings. But amidst this, a powerful movement emerged in 2016 on Instagram under the hashtag #getyourskinout. This movement’s goal
4 Psoriasis Warriors With Stories to Tell Read More »
