How can we shift the narrative surrounding social stigmas, especially for diseases that are physically visible, such as psoriasis?
The Weight of Stigma
It took me years to recognize the psychological burden that psoriasis had placed on my shoulders. The first time I confided in a close friend about my condition marked a significant turning point. Her calm, compassionate demeanor made me feel seen, and her genuine curiosity helped me begin to accept myself.
Yet, explaining my condition to others was a struggle. Questions like “Why are there so many flakes in your hair?” or “What’s that all over your skin?” often left me feeling defensive and ashamed. Looking back, I realize that my frustration was misplaced; I had directed my anger at my own body instead of addressing the root issue—the societal stigma.
So, how do we begin to change how society, or even our immediate circles, perceive physical diseases like psoriasis?
1. The Case for Non-Judgment
The simplest and most powerful message we can share is this: “We are not inferior to you just because we look different.”
Judgmental stares and avoidance can sting, but we can help bridge the gap by turning psoriasis into a conversation. It starts with a willingness to speak up and the courage to educate others. Imagine a world where we can casually say, “I had a bad day today,” without fear of judgment—this should be the goal.
Start Small
Begin by sharing your story with people you trust and feel comfortable with. These conversations are less intimidating and help you build confidence. Avoid starting with those who have been dismissive or difficult to engage; focus on creating positive experiences first.
Be patient. Change takes time, but with persistence, you’ll notice a shift in how people respond to you and your condition.
2. Show Compassion, Not Pity
There’s a stark difference between compassion and pity.
What we need to hear:
- “Are you getting the support you need?”
- “Thank you for sharing this with me.”
What we don’t need:
- “I’m so sorry you’re going through this.”
Pity places a barrier between us and others, reinforcing the idea that we are to be pitied or avoided. Compassion, on the other hand, fosters connection and understanding.
Small Acts of Empathy
I’ve been fortunate to have people in my life who remind me not to worry about the flakes I leave on their sofa or who simply listen without judgment. The most common and heartwarming response I’ve received is, “Wow, I’ve never heard of this before, but thank you for sharing.”
At the end of the day, compassion empowers, while pity discourages.
3. Be the Catalyst for Change
Lasting change begins with a single conversation. One person willing to open up can spark a ripple effect of awareness and understanding. As Gandhi said, “Be the change you want to see in the world.”
Your Call to Action
This week, make a commitment to yourself:
- Speak to one or two people about psoriasis.
- Share your experiences and answer their questions.
- Let their empathy fuel your journey toward self-acceptance.
The path to breaking stigmas is not easy, but it is necessary. Together, we can create a more inclusive and understanding world—one conversation at a time.
Final Thoughts
Changing how society perceives psoriasis—or any visible condition—starts with us. By educating our friends and family, showing compassion instead of pity, and opening up about our experiences, we can dismantle stigmas and foster acceptance.
Let this be the week you take the first step. You’ll be amazed at the impact one conversation can have.