Living with psoriatic arthritis has been a journey of learning, growth, and self-discovery. One of the most important lessons I’ve embraced is this: you don’t have to suffer in silence.
In the beginning, I felt alone in my struggles, believing no one could truly understand what I was experiencing. Over time, I realized I wasn’t alone. Meeting others who share this condition has been life-changing. They’ve given me the courage to persevere, and I’ve learned to stop blaming myself for my diagnosis—because there was nothing I could have done to prevent it.
Running a support group for years was one of the most rewarding experiences of my life. Sharing my pain with others who understood made me feel seen, heard, and empowered. Here are the nine key lessons I’ve learned from living with psoriatic arthritis.
1. Learn to Recognize Change
When the swelling began in my fingers and toes, I knew my life was changing. Recognizing these shifts early allowed me to seek the best doctors and start treatments to manage the condition.
- Cold packs became my go-to for pain and swelling. Heat therapy works well too.
- Understand that life will keep teaching us lessons until we learn from them.
- Look for ways to improve your quality of life, one step at a time.
2. You Can Help Others
Helping others has been incredibly fulfilling for me. Whether it’s attending events, volunteering, or simply sharing my story, I find purpose in supporting others.
- I make an effort to attend meetings or events, even on tough days.
- Volunteering at nursing homes and seeing the elderly smile is a reward in itself.
3. Ask for Help
This was one of the hardest lessons for me. I thought I could handle everything alone, but pain has taught me to lean on others.
- Asking for help doesn’t make you weak; it shows strength.
- If you don’t ask, people may assume you’re fine, so speak up when you need assistance.
4. Seek Professional Help
It took 25 years for me to get diagnosed with psoriatic arthritis. Persistence is key.
- Trust your instincts—if something feels wrong, seek a second opinion.
- Don’t be afraid to ask your doctor questions; you often know your body better than anyone else.
5. Remember: You Are Not Weak
Having psoriatic arthritis doesn’t diminish your strength.
- Yes, we face pain and challenges, but that doesn’t define us.
- Even on the days when opening jars or climbing stairs feels impossible, keep trying.
6. Know Your Body
Understanding your symptoms is crucial for effective management.
- Psoriatic arthritis can manifest in various ways:
- Scaly rashes and nail pitting often appear early.
- Symptoms like sausage fingers and joint pain can develop later.
- Over time, I’ve experienced spinal stiffness and pain in my shoulders and knees, which limit my activities. However, with the right medications, things have improved.
7. Just What the Doctor Ordered
Managing fatigue is a constant battle, but I’ve learned strategies that help:
- Drink plenty of water and maintain a balanced diet.
- Exercise, even if it’s just a few minutes a day.
- Get enough rest and follow your doctor’s recommendations.
8. Be Your Number One Advocate
Advocating for yourself is non-negotiable when living with this condition.
- Explain your limitations to others: fatigue, pain, or needing to say “no” isn’t personal.
- If I talk too much about my condition, it’s only because I want to contribute to the conversation about finding a cure.
9. See a Specialist
If you have psoriasis, know that psoriatic arthritis could also be a possibility. A rheumatologist is your best resource for diagnosis and treatment.
- Rheumatologists will look for signs like swelling, pain, and joint damage.
- Tests like X-rays or MRIs are used to confirm the diagnosis.
- Ask questions—it’s your health, and you deserve clarity.
Final Thoughts
Living with psoriatic arthritis isn’t easy, but it has taught me resilience, self-love, and the importance of community. If you’re navigating this condition, know that you’re not alone, and each challenge is an opportunity to grow stronger.