Living with psoriasis often feels isolating. People like us, who battle this condition daily, may feel different, unattractive, and even misunderstood. Social media doesn’t always help—endless posts of people flaunting their flawless skin can deepen those feelings. But amidst this, a powerful movement emerged in 2016 on Instagram under the hashtag #getyourskinout. This movement’s goal was simple yet profound: to build a supportive and inclusive community for individuals with chronic skin conditions. Fast forward to today, and it has blossomed into a thriving community with over 10,000 followers.
I know how lonely living with psoriasis can feel, especially when you don’t have anyone in your immediate circle who truly understands what you’re going through. However, I’ve found immense encouragement and solidarity in the stories of online psoriasis warriors—people who courageously share their journeys, offering empathy, advice, and hope.
If you’re searching for inspiration and strength to navigate flare-ups or simply want to feel seen and supported, meet these four remarkable warriors. Each of them proves that every skin, no matter how scarred, has a story worth telling.
1. Holly Dillon, 31 (@getyourskinout)
Holly Dillon is an Irish woman working as a senior producer for Variety magazine in Los Angeles, California. But her Instagram feed isn’t about her glamorous job. Instead, it’s a safe space for others living with chronic skin conditions. Holly frequently features users who tag her account, highlighting their strength and body positivity.
Through her platform, Holly also shares her experiences with both medical and natural treatments. Her notable contribution is producing the mini-documentary “Beneath My Surface,” which raises awareness about the profound impact of skin conditions on people’s lives.
2. Rocyie Wong, 27 (@rocyie)
Rocyie Wong, a Malaysian advocate, is the founder of @projectnaked_ and @safespace_my. Her Instagram radiates raw honesty about the emotional toll of psoriasis flare-ups. She champions the importance of self-care and encourages taking time off social media when needed for emotional healing.
Rocyie doesn’t just stop at advocating for skin positivity. She’s also a familiar face at health and wellness talks. Last year, she earned recognition as an honorary citizen of Nebraska after representing Malaysia at the Young Southeast Asian Leaders Initiative (YSEALI) Academic Fellowship. Her posts are a powerful reminder that healing goes beyond skin-deep.
3. Ahila Jegerajan (@naturallyhealpsoriasis)
Ahila Jegerajan is a globe-trotting mother of two who firmly believes in the body’s ability to heal naturally. Having lived in Australia, Asia, and London, Ahila recently returned to Australia, bringing her wellness journey full circle.
Her Instagram is a treasure trove of tips on skincare products and immunity-boosting foods that help her manage psoriasis and psoriatic arthritis. Ahila also credits meditation for her healing process, sharing how mindfulness has helped alleviate both physical and emotional pain.
4. Chiara Lionel, 22 (@chichilionel)
Chiara Lionel, at just 22, is a beacon of hope and positivity for young psoriasis warriors. A makeup artist based in Indonesia, her love for beauty shines through her posts, where she confidently showcases her craft.
Chiara’s message is simple yet powerful: self-love is the foundation of beauty. Her infectious positivity uplifts anyone who visits her page. She’s a shining example of how age is no barrier to inspiring others.
Final Thoughts
Whether you’re struggling to accept your psoriasis diagnosis or searching for uplifting stories to keep you going, these four warriors are just the tip of the iceberg. Their resilience, advocacy, and self-love serve as reminders that we can all rise above our circumstances. Your skin tells a unique story—and it deserves to be celebrated.